Rare cancers associations in France

Discover the list of information sites on rare cancers (in alphabetical order).

Association "Des étoiles dans la mer, vaincre le glioblastome"

Association supporting patients with glioblastoma, funding research and raising awareness among public opinion.

Association Française des Malades du Myélome Multiple

Association which supports people with multiple myeloma and their families.

Association HNPCC-Lynch

Association which brings together families confronted with Lynch syndrome or HNPCC (Hereditary Non Polyposis Colorectal Cancer), a hereditary predisposition to familial colorectal and uterine cancers.

Association pour la Recherche sur les Tumeurs de Rein (A.R.Tu.R)

Association which supports patients and develops research on kidney tumours.

France Lymphomes Espoir

Association which assists and informs lymphoma patients.

Info sarcomes

Association which aims to develop knowledge of sarcoma and improve their management.

LMC France (Leucémie Myéloïde Chronique)

Association which supports people with chronic myeloid leukaemia, a rare form of leukaemia.

Maladies rares info services

Portal for patients, their families and healthcare professionals.

Rare Cancers Europe (in English)

Rare Cancers Europe (RCE) is a multi-stakeholder initiative dedicated to putting rare cancers firmly on the European policy agenda.